Kids

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Saturday, March 22, 2014

Six Months of Night Light


The following are blogs and posts that I have written over these past 6 months. They are memories and feelings that I hope I always keep with me.That first night seems like a million years ago in some ways and like yesterday in others. I never want to forget the anticipation, nervousness, and excitement. I am compiling these memories for myself so they are in one spot. They are also for others that might be interested in seeing what God can do with a bunch of people who have a tiny plan to love people the way Jesus did and are willing to allow God to grow that into His own thing.

Night Light’s First Night

Thursday September 19, 2013 marked our 1st ever Night Light! Much planning, preparation, and prayer went into our first night under the bridge at Maybelle and Brady! I was sick to my stomach with nervousness and excitement. I wasn't sure if I wanted to laugh, cry, or throw up. We were beyond thrilled to host approximately 35 guest and about 20 volunteers! I loved watching the interaction between volunteers and guest from both the homeless population and the neighborhood.
The smell of hamburgers and hot dogs filled the air and filled lots of stomachs as we grilled about 65 burgers! It was great to see people from all different paths sitting together at tables and building relationships. We also were able to hand out many gifts from our "blessings table". It was fun to watch as some of our female guest sorted through donated soaps. I even saw that some of our amazing donors had given brand new "bath and body" products! Some of our guest stepped way out of their comfort zone and allowed us to wash their feet and clothe them with new socks! This was a favorite station of mine as it allowed us to really visit with someone we didn't know.
What an amazing night! God has provided more than I could have ever imagined to do myself or with any group of people. I am excited for what this next week will hold! I hope that our consistency and our love for people will reach all of those that we saw looking on from a distance.

Food line during our first week

Double Blessings (Week #2)

I have spent several days processing the events of last Thursday's Night Light. There are really no words that can fully explain the relationships and blessings that were exchanged that night. I will do my best to recall some of what I was able to see or hear about. I am truly unsure of who was blessed more...our guest, our volunteers, or our core staff!
As we met for volunteer orientation the guest were already coming in, finding a seat, and waiting on us. Within our first 15 minutes we had surpassed the number of guest for our entire first night. We had about 30 volunteers (including core staff) this is 10 more than the previous week. By the end of the night we had nearly tripled our first night number and served approximately 80 guest! We were excited that many of the guest we had met the previous week had returned. We were also excited to see kids from the neighborhood coming with their families and also kids coming with volunteers. We look forward to the all the possibilities as the children bless each other and build friendships!
The host/hostess group heard many of our guest saying things like "I can't believe you guys take time to talk with us" and "this is the first time I have seen Jesus down here". We do not force any lesson or prayer time upon our guest. Our goal is to build relationships and let visitors know they are important. Whatever comes from that relationship is a bonus! At the blessings table I heard so many guest excited and grateful to get multiple items from underwear to cough drops.
The foot washing station was a amazing place to be. Last week I washed about 6 guests feet. This week it was around 15! At this station I watched as a daddy and daughter worked together and a friend worked with my sweet Benjamin to wash feet. The guest certainly felt pampered! Toward the end of the evening one of the guest whose feet I had washed the week before came in. He walked directly up to me and said "sit down, now its your turn." It was such a touching moment and I was so overwhelmed. Never did I see this coming. What a special thing that I will always remember. Also, toward the end of the evening we had a lady in need of shoes and one of our volunteers, without hesitation, took his off and handed them to her. He was in his socks for the rest of the night.

Guest washing my feet

Living the Mission (Week #3)

This past Thursday brought forth a large growth of volunteers. I am glad that the word is getting out and that people want to be apart of this experience! It was our third week under the bridge. We have had many new faces each week, but we are also seeing many regulars, both guest and volunteers. It is fun to watch everyone greet each other after being apart throughout the week. These are the relationships that the Night Light staff has been praying about and striving for. All of the food, blessings, etc. are just reasons to meet someone new, open a door, and build a relationship. Our very gracious guest have made very easy to do. This week we witnessed many acts of kindness. Some of our homeless guest even helped us clean and load up at the end. Then they circled up with us for a prayer before we left.  It has been amazing to watch this mission come to life and cross worldly barriers...blessing all involved with gifts of love, hope, encouragement and non-judgment.
Orientation

Loving Individuals, Giving hope, Touching souls (Almost 2 Months)

Night Light Tulsa has almost reached its 2 month mark of serving under the bridge. After many months of praying, planning, and preparing, we are now enjoying watching where God is leading us. We have watched many new friendships form and blessings being traded between our guest and volunteers.
In the past few weeks our Night Light Tulsa donators didn't miss a beat stepping up to the challenge of keeping our guest warm. Last week our guest waited patiently for blankets, coats, gloves, and other warm items. We were so overwhelmed that our donators had filled these request and we had plenty to give out. Each guest was so grateful for these items and we heard "thank you" along with their stories of trying to stay warm the last several nights over and over.
The foot washing area is of course my favorite area. It has been really taken off. When we first opened this area our guest were unsure of what to think. They would watch from a distance as a brave soul would venture over every now and then. Now this area stays busy. We have started warming the water as it has turned cold and they are truly in for a treat as we wash, lotion, massage, and powder them. I love to hear them brag to the next person in line! Each person leaves with a new pair of socks. This week we had a gentleman come up in a pair of dirty socks and no shoes. His shoes had been stolen the night before. I watched as our amazing volunteers covered him in dignity and love. When he left this station he knew he was important to us and he had clean feet, new socks, and a new pair of donated size 10 shoes. The relief on his face was enough to warm all of us standing there.
The food table remains busy from the time we open until we close. The line typically extends out the bridge. Last week we served about 200 guest. Each week we have watched God provide just the right amount of food to feed our crowd. One women shared with us that this is the 1 good meal she gets each week. Our servers and our host and hostess' have done an amazing job working together to get the food out and to share a meal at a table with our visitors. 
I am amazed to witness the graciousness of people. Both our guest and volunteers have pushed themselves to step out of their comfort zones- to not draw a line in the sand of "them" and "us". We are all the same. All children of the King. All brothers and sisters. Some of our guest are already recognizing this as something different than what they have seen before and are beginning to ask questions. Others are not to that point yet. Either way, we continue to build relationships with everyone under that bridge. We are blessed beyond measure with all the support Night Light has been given and we strive to make a difference by Loving Individuals, Giving Hope, and Touching Souls.

Donated Blankets

Beginning of November

I am still in awe of the movement to love and serve each other that I saw last night. I want to share a few stories about people making a difference.
The first story is of a young lady who has found herself homeless for the first time. She and her husband were in the low-income category to begin with. Her husband was murdered and she lost everything after his passing. As she was on the streets with her coat, a blanket, and about $20, she was followed by a group of guys. They stole everything from her. She came to us with no coat, no blanket, and a lot of hurt and sadness. Our volunteers were able to be an outlet for her grief. They built her back up and provided her with a warm meal, a coat, blanket, pants and a warm shirt, and many essentials. 
The next is about a little girl from the neighborhood. Her parents are divorced and she comes down to visit us each week by herself. She is the sweetest little girl! She always comes by with a hug and a story. This week she was asking for blankets so she wouldn't have to share one blanket with 2 of her siblings that she sleeps with. We ran out of blankets before she got one. She said she will be back earlier next week.
Last is a story from a volunteer:
"My friend that came to help last night (at Night Light) told me that he and his daughter sat and talked with guests that were there for the first time. At the end, the guest said that after his meal and watching people receive clothes and others getting their feet watched, that he truly felt like it was the first time he had ever been at "church"."
There are so many stories. They are from here...in Tulsa. When a donation is made people are not just giving out a coat- someone is loving that individual and building a relationship as they help them pick it out. It gives them an opportunity to be a "real" person and find something they like. They are giving them warmth and safety from the elements. It is so much more then a coat that wasn't used anymore. It is like that with all of the donations- both physical and financial. It is so humbling to be a part of this opportunity.

Night Light in November

Posts from my Facebook

Proud of Ben

So proud of my Ben, who last Friday hopped in the car and said "I need some Night Light flyers"...and then today followed up and took them to some of his teachers! When I asked him why he thinks we do Night Light his response was that we are suppose to show others Jesus. This is a way we can do that. Love, Love, Love his heart!

A Beautiful Opportunity

Don't know if I can sleep... pretty sure I can't. Tonight at Night Light I took a minute to step up into the shadows of the bridge and watch. This push from God over a year ago...between a couple friends... has turned into this beautiful thing. God has led it completely. Putting all the right players in place and providing everything we need....down to extra socks at the last minute tonight. I watched as several different groups served together. It didn't matter whether you were from this church or that, a teen or elderly, homeless or with a home. There were many stories I got to hear about or watch unfold but one that I loved was as one volunteer unknowingly asked another if she could wash her feet. The volunteer declined and they laughed as they realized they were both volunteers. Then the first came to me and said "I love this, we are all the same under here. You can't tell who is who." What an amazing thing it is to love people and serve one another without it mattering what you do or don't have. Loving and caring because ALL people are important and because that is exactly how God thinks of us. I am so blessed to be able to meet so many amazing people each week. Thank you Lord for this opportunity.

Blessings Of A Harsh Winter

It was around 16 degrees at Night Light last night. I had about 3 layers on along with 2 pairs of socks and 2 pairs of gloves. When I got home it took a few hours to thaw out. As cold as I was, I wouldn't have changed a thing about last night. This harsh winter has brought many blessings under that bridge. Over and over our guest, now our friends, continue to talk about how they know they can rely on us to be there. Amazing volunteers continue to bundle up and show up! And it's not just volunteers we know. Last night there were at least 8 new volunteers (off the top of my head) that came by word of mouth and Facebook! Other supporters continue to donate warm items, essentials, and money- all necessary tools for setting up relationships and loving people. A few favorite moments include one man sharing that he's never felt homeless when he's with us. He said, "it's always just felt like I am a guest in your home." Another sweet guest never misses and each week he comes over and expresses how thankful he is to spend his time with us and how grateful he is for the meal...he does this each week before he leaves. Another young guy came over and asked Anisa Jackson and I if we pray. We answered yes. He said, "well, I don't really believe in that stuff but I have a friend"...and he continued to share concerns on his heart and asked us to pray for this friend and his friends children. Before he walked off he again said he didn't believe but he's noticed that when people who do believe, pray, sometimes things happen. He doesn't even recognize God working in him...but we did!  I also love that one of our first time volunteers who was there with her teenage daughter (who had previously made and donated warming kits over the holidays just from hearing about us) stated "this is really fun, and amazing". She also commented how she could see the relationship between everyone just by watching interactions. Also, one of our guest that really struggles with alcohol was sober last night and we got to have a great conversation. The winter is hard but what better way to show how much each person means to us. And they do- guest, volunteers, and supporters! I am sure that I am the one blessed beyond what I could ever imagine. Wouldn't change a thing!

My hubby and oldest son braving one of the cold nights!

Rick

The last two weeks have been extremely frustrating, challenging, and just all around rough with a lot going on with different things in our lives. Last night as I got to the bridge I saw the sweet familiar face of Rick. He is a friend that hasn't been out in several weeks because he has been in the shelter and they don't let them out at night or they lose there spot. He sat there on the curb, his wheelchair next to him. He had arrived a hour before any one of us would even be there. I was so glad to see him that I immediately went over and sat with him and gave a gentle hug. He began to sob saying how much he's missed meeting with us and explaining that he couldn't leave the shelter. Last night he chose to sleep on the street just so he could spend a couple hours under the bridge with friends. With us. I could have sat right there holding his hand the entire night. I watched numerous people love on him. I don't think he even realizes what a blessing he was in my life last night. I have other sweet happenings from last night that I'll share later. This one has just really been on my heart all morning.

What I Love About My Time Under The Bridge

There are so many things that I love about spending my Thursday nights under a bridge. Here are a few from last night:
  • The hugs from neighborhood kids, guest, and volunteers
  • Surprising the kids with their favorite color of socks...its the little things!
  • That it doesn't matter how many weeks ago I washed someone's feet-somehow they remember my name and what we talked about. I love these rela...tionships.
  • Seeing volunteers that haven't been able to be out it a few weeks come back ...they never know how much they have been missed!
  • Watching people mobilize themselves whether it is an 8 year old girl and her family who take a dollar and turn it into $150 to donate and she also challenges her neighborhood to donate used board games for an upcoming springtime game night OR a volunteer that challenges those around her to give blankets and comes to the bridge with around 80 to give away. 
  • Stepping back and watching God use people to provide EXACTLY what is needed- last night we went to the bridge with very little clothing/coats and only one blanket. Volunteers showed up with around 80 blankets and filled the clothing racks with exactly what we needed for the night. 
  • LOVE THIS ONE- a guest who has been coming for weeks and is always so quiet and reserved- steps out and hugs you. 
  • Knowing that God is leading.. There is a house nearby that we contemplated renting for storage. We decided against it and last night the new renters joined us under the bridge. 
  • "The popcorn man" and how he came to be
  •  Animal Control coming out to love on the animals...not take them away. AND... on there own, and apart from their shelter...arranging for a vet to come out in April and give out free rabies vaccines to the dogs...I never expected that type of mobilization!
  • New people 
  • "Regulars" 
  • Volunteers who keep coming regardless of being uncomfortable the first time...each week they become more comfortable and fall more in love with the relationships and the opportunities to love people....and when they say "I want to try the prayer table sometime soon, but I am not ready yet" and then take a host position....and God knows them better than they know themselves....and a guest asks them to pray. Right then. Right there. And they do!!...and they surprise themselves. I LOVE THIS!

I love so many things and so many people that are connected to that bridge and to my Thursday nights. If you have never been out there I urge you to step out and see what it is about. You will bless so many...and you will be blessed. If you can't be out there and want to be apart of it in some way, call me. There are things you can do to help that you probably don't even realize.

Alan the "popcorn man"

Adaria

I met Adaria about 3 weeks ago. The first thing she ever said to me was "nice to meet you Sarah. If you met our Savior today what two words would you say to him". And with that loaded question our friendship was born. She lived homeless for two years and now lives with an older lady (she herself isn't young). They house a couple of other homeless folks. Last week she searched me out and asked me to pray for wisdom for her to know the right ways to help homeless people. This week she came over as I was washing feet and asked if she could help. She put gloves on and got after it. I sat with her as she washed Shawna's feet. Shawna is a new friend. She has one week before she will be kicked out of supportive housing (something to do with our system and a felony). She is slightly younger than me. She shared with us her struggles with mental health and that she had a felony. She sat and cried. Overwhelmed. She knew where she came from and where she would be headed if she ends up back on the streets. For now she is going back to her mom's in Louisiana to prevent that but she left there to have a new start as that's where her troubles and struggles began. We grabbed hands and Adaria said a sweet prayer over her. Please pray with me for both my friends. It was a blessing to be apart of this moment and I feel lucky that these sweet women felt comfortable sharing their lives with me.

Prayer Request

Many times, my time under the bridge is spread out (which I like). It's not typical for me to be able to spend the entire evening in one area. My nights are usually a rainbow of hugs and updates on how guest are doing, praying and talking with those who need a listening ear, meeting new volunteers and answering questions, listening to previous and new volunteers disclose experiences and feeling that only come from serving like this, searching for things that didn't make it off the truck, connecting people, monitoring the environment, and looking for little neosporins (darn things go so fast). Things like that. Last night was typical in that way so it's not surprising that I was running behind on cleaning my foot washing station up. Many times people will wonder up after we've shut things down but last night it wasn't just one person. Last night was different. This was a panicked mother pushing her 2 year old baby in a stroller (breathing nebulizer in the bottom of the stroller because the baby has RSV), and her 4 boys ages 5 to 16 carrying all of their backpacks. They had just been kicked out of one of the shelters for missing a meeting by 20 minutes. Her phone went dead while trying to get them into another shelter. She was lost. It was dark. She had all her babies with her....and here she was standing in front of me. Panicked. As I pulled out my phone and began to help her she and the kids were surrounded with love (I love our people under the bridge). I was able to get her into the shelter and sat with them through the whole process. I've also been able to go back and visit with her today. I doubt many of us even know how blessed we are and how flawed our system is. Let me tell you this, I am forever changed by this experience. God uses us when we feel undeserving of being used. He opens up doors and waits for us to walk through them. He wants us to find ways to encourage one another. We all need it...both on the giving and receiving end. My words are scattered as I still process everything that I've heard and seen...and knowing 5 precious kids are living this, along with their exhausted momma. Please pray with me for this dear family.

Blessings From The Bridge

I'm convinced that foot washing is the absolute best station under the bridge. I love when a volunteer steps out of their comfort zone and fits so perfectly in a new area. I love watching the blessings flow back and forth. I love sitting at our guests feet and listening. I love how they go from a guest to a friend in these few minutes. I love washing feet with my eight year old son. I love all of that. And tonight I also love that as one of my friends was leaving the bridge to go back to her "home" she was sure to stop by, give me a hug, and say I love you. Awe, if only I could fill others hearts the way mine is filled each week.

 Night Light -6 months this month



Wednesday, March 12, 2014

Back To Writing About My Passions...

Back To Writing About My Passions...



It has been a couple years since I last posted. So many amazing things have happened in our lives since then. Probably to many to hash out here for fear that I would bore any random reader that may stumble across this blog. What I will say is that God has blessed us with health which has been a huge thing if you've read though my past posts. We are so thankful for the life we have. We love our 3 beautiful children beyond words. Ben is almost 9, Lizzie is 6, and Isaac is about to turn 4. They bring so much joy to us. I am married to an amazing man. In fact, today Jason and I are celebrating our 14th anniversary. He is the best part of me. Truly, he is. I have been so lucky to have him next to me. I have wanted to come back to writing this blog for some time now. I've struggled with whether or not it is something I want to commit to. I want to chronicle so much. So many things have come at us in this last year that I don't want to forget. So many things are ahead in the next. So here I am.


I imagine my post will be a mix of things going on here with our children. They are always an easy subject to write on as they are a never-ending cycle of humor, love, arguing, memories and much more:) They consume much of my time and I wouldn't have it any other way. I plan to start homeschooling them at the beginning of next year. You may find yourself reading all about the good, bad, and ugly, as I try to navigate those waters. I do feel much relief knowing that I have many friends to use as resources. I am hoping that with soften the blow of "I have no idea what I am doing and would someone PLEASE remind me WHY I am doing this?"

I also want to write about Night Light, which is an outreach, ministry, mission,....well, its been called many things, but it has became a passion of love for me. Its purpose is to build relationships with those who have so much less than ourselves. Jason and I have had this type of thing on our hearts for several years now and saw a documentary that mentioned other places that were doing amazing things. We had talked to other couples about it and they were interested but the doors just weren't opening. This summer, after taking our son out to feed the homeless for his birthday (at his request), and after taking our community group down to hand out food, we saw the doors began to open. I contacted another girl who I knew wanted to do this before and also another girl that was interested and we met at our house. From there, our group grew. We started meeting in July to discuss what this would look like, and by September the Night Light team was armed with more than we could ever imagine. Most importantly, we were armed with the love of Christ. That took all selfishness away and let God lead us completely at the beginning. Our goal was to love, bring dignity to those we meet, and to show them that they are important. Over the last several months I think my friends under the bridge have done more for me than I could have ever done for them. My eyes have been opened to many things. I was completely ignorant to our own cities treatment of the poor and homeless. I had never really stopped to consider how people get to a point in their lives where they are homeless. Or how difficult it is to pull yourself out when you have lost everything...including self worth. I have also seen how amazing people can be. How they will rise above what you ever imagined. How they can be moved by opportunity. I have watched God provide week after week and I have watched Him use people who absolutely didn't think they were ready to be used. I have also learned that people are many times, not what they seem- both in good ways and in bad. That is a lesson I am still learning to stomach. That sometimes people choose selfishness and pride. That Satan will use whatever he can and disguise it however he has to. Lets be honest here (and yes, I do want this to be an honest blog), where there is good, there is bad...it is reality, and it can seep in wherever we allow it to. However, I want to choose to keep my focus on Christ and how He is working. Some days, this is a minute by minute, forced decision, and many days, I fail.

 
 
So, that's a good start! I am going to post some of the blogs that I had wrote for the Night Light site and also some entries I made on Facebook. I don't want to lose those thoughts in the sea of posts. :) I hope that if anyone is out there reading this, that they will feel free to leave me a comment. I love to read  feedback.

Thursday, April 12, 2012

Suffering or Surrendering...



These were our testimonies. Lizzie was to afraid to go
through with it which was fine. Ben was very brave and those are his words.

This past Easter weekend we were asked to be part of cardboard testimonies at our church. It was such a great honor to stand on stage with so many courageous people. As I looked around and took in everyones stories or visited with people I began to feel unworthy to stand with so many amazing people but I will never pass up the opportunity to share what God has done for us. As we were sketching out what our boards would say, I quickly became very humbled and my eyes were opened to all the struggles I have had that God has so obviously brought me through...some which I think I just went on without taking a second glance to thank Him. If you haven't ever stopped and reflected on all you have been through, I highly recommend doing so. Take some time to pray about it and then spend time writing out several of your own "cardboard testimonies". Our God is so good and so faithful.

These testimonies have flooded me with many thoughts and emotions. So many times we suffer alone, quietly, and in darkness. This is exactly what satan wants. We completely separate ourselves from Gods light and the grace and the love only He can offer. Many times this happens so subtly we don't even realize that it has happened. I am sure that everyone has felt this at some point and many may currently struggle with it. The amazing thing that I am learning and hopefully will begin to use as my first response is that if we surrender to God, He WILL take over. He will work within us. What a powerful and peaceful thing that is!

This isn't to say that surrendering is easy. It takes great courage to admit we need help. It takes great courage and desire for change to be transparent in our lives. But the reward of that courage, the relationship with a God that loves us so deeply and gives us amazing perseverance and peace, is so worth it! I pray daily that I will choose to surrender and stop choosing to suffer.

2 Corinthians 1:3-4
"Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles,so that we can comfort those in any trouble with the comfort we ourselves receive from God."

What a great system God designed! Through surrendering we are blessed but it doesn't end there. We are also able to bless someone else who suffers! I hope that you will take time to watch the following link. It is Mitch's sermon from Sunday, along with the cardboard testimonies. Choose to surrender and watch what God will do with you and your experiences! Love you all!

http://av1.w3e.subsplash.com/media/download/57P2D4/2012-04-08--Mitch_Sermon.mp4

Monday, March 12, 2012

A Fantastically Normal Day!

Our Picnic

It has been a while since we have had a "normal" day at our house. Some of my favorite memories so far of the kids are them running in and out of the house (which does drive me a bit crazy), running from one thing in the backyard to the next, making up games, laughing, and of course there is always SOME tears and tattling. I love those memories for them. I love how the time change, which brings more light, and the warm spring air, pulls the kids from playing in their rooms to playing outside. It seems like it has been so long since I have had the kids completely to myself on a weekday afternoon. I use to take this for granted...being able to watch and play with them was something I easily did. Things haven't been that easy for quite some time now. So today, was wonderful! The kids did it all and I got to watch and play along too! Swing set, sandbox, trampoline, TreeRings (a game my sister made up to play with them), running, playing, laughing. It was the perfect normal day! We topped it off with a picnic dinner, nothing special but the kids were excited. Jason was out of town tonight so we did miss him. I am so thankful that I get to be apart of my kids lives. They are such a blessing to me.

Isaac having fun in the sandbox

Ben playing on the swing set!

Elizabeth climbing on the swing set!

Isaac hanging out with his new pal, Loyal, and watching
Ben and Elizabeth on the trampoline!

Ben playing TreeRings!

...And some black and whites...because I am a sucker for them!

He loves his puppy!

She loves playing on the trampoline with Ben!
Look at that hair :)

Love it when he laughs...so contagious!






Friday, March 9, 2012

Has it really been a month?

Who wouldn't be THRILLED to come home to this guy???

 
Well its true! Yesterday marked one month since my resection. It is hard to believe, it seems so fresh. I am still overwhelmed looking back on everything and seeing how clearly God layed out everything for us and brought support to us. We are still receiving cards of encouragement...some from people we know and others from people we don't. I am still struggling with thank you not being enough. We have been so loved and so encouraged. Jason and I both pray that we will allow God to use us however we are suppose to be used and without holding ourselves back.

I am doing very well. Each day gets a little easier. It is soooo nice to be done with the crutches! It has been almost 2 months since that surgery. I am still in a boot for a couple more weeks. My foot is a little weak and still swells if I am on it to much but the pain is better and I am able to get around pretty well. As for my throat/breathing... I can now go up the stairs without becoming short of breath and make it through books when reading with my kids. I am still slowly increasing activity so we will see how it goes. I started driving yesterday which makes me both happy (freedom) and nervous. I am able to move my neck from side to side pretty well and it is beginning to loosen up when I nod up and down. I can't lean my head all the way back and I try not to turn from side to side to quickly. Part of it is nervousness and the other is that it is so tight. I am avoiding rush hour for now :) Hopefully I will be able to go for a massage sometime soon to help with some of that.

I started talking a few days ago. My voice is a little deeper than usual. The stenosis was 5mm from my vocal cords. I think it will probably become more "normal" with time. I can't really project my voice and my hoarseness comes and goes....all will improve with time I am sure. I still am restricted on cheering, screaming, singing...and so on. I never realized how much singing I do to my kids! Poor babies..lol, clean-up songs, washing songs, patience songs...they are all on hold for now :)  It feels strange when I swallow. Almost like my throat is moving up and down in an extreme motion. I did have Jason watch me to make sure this isn't the case! lol. It also still feels a bit swollen and I have to concentrate a little more when I swallow and my throat feels very dry most of the time. I try to keep water with me to help with this. The incision is looking better and better. The last part of the scab fell off a couple days ago. I am still having some deep tissue pain where the JP drain was but nothing so intense that I can't handle :) My energy level is improving and I can BREATH! I think my body had become quite use to a very dangerous situation....my body was use to living breathless to the point of me not even noticing it as much as those around me. Its scary. I am very thankful.

For my follow-up I will be sending tracheal series x-rays to Boston for Dr. Mathisen to review. I will do this next week. I have heard that you do this again at 3 months but Dr. M hasn't said that to me yet. Other than that I just take it slow, enjoy breathing, and listen to my body. My surgeon has a 95% success rate so I am very hopeful. I know this was a lot of rambling about how I am doing but I know that there are several others that have just been through their resections or are about to go through them and I hope that they can read this as a reference of what to expect.

Today is my first day completely on my own. I made breakfast ("made" is defined loosely ), packed Ben's lunch, dropped him off at school, attended a PTA meeting, went to Walmart, bought presents for B-day parties this weekend, picked up lunch, and just layed Isaac down for his nap (it is now noon). I am pretty tired so I will probably take a little break before continuing on with todays "to-do" list. I am so glad to be home and trying to get back into a normal routine. It is wonderful to be able to hug, hold, and laugh with the kids, to spend time with family and friends, and to be able to attend church again. I even made it up to the unit (neuro ICU) one night to visit with co-workers/friends. I am taking it slow but can't wait to be 100% again!!!

1 month ago!

Today! The difference a month makes! Love my Lizzie!







Saturday, February 25, 2012

Home at Last!


We were able to come home on Thursday night. We just couldn't take being away from the kids any longer. We didn't tell them we were coming. They were playing Wii when we walked into the room. Ben jumped up and hugged me. He said its an answered prayer.."because I prayed you would come home early" (we thought it would be Friday after we weren't able to make the Tuesday date). His teacher told me the next day that he told her his prayer was answered as well. He kept it together but he looked like he could burst into tears at any moment. Lizzie looked shocked. She got up and hugged us and hasn't got far from either of our sides since. Sweet little Isaac saw Jason, said "Daddy" and started laughing and running around crazy :) It is so good to be home with them.


They have all three had lots of questions and concerns about my "ouchies". At first it was lots of looking at my throat incision and asking if it hurt. Lizzie has lectured me about all the things I am suppose to do and NOT suppose to do. She was also concerned because I am no longer having to use my crutches and asked if the doctor said that was ok. I love that little girl...she is typically not the rule follower of the house but she certainly knows how to boss everyone else into following rules! lol! In fact she just handed me my head pillow "to keep my head straight".  Ben has been telling all of his friends about my neck being cut. I laugh because of the motion he uses while telling them. It is like in an old movie when the villain looks at the good guy and does the "cut your throat" sign across the room. So funny! All of them are so tender with me and have each, independently came and cuddled up next to me declaring their love.."momma, I love you so much", "momma, I love you to infinity and beyond", "momma, I'm so glad your home". I of course, can't hug, kiss, and cuddle them enough. Jason and I have been working hard to reassure them. They are all three a little concerned that we are going to leave again.

Yesterday I was able to go to Benjamin's Jump Rope for Heart. He raised $130.00. Thank you to all who supported him. He is a great jumper! I am proud of his kind heart and how he really wants to help sick people. This is where I watched him tell his friends what happened to my neck. I was worried he would be embarrassed and asked him if he was sure he was ok with me going before he left for school that morning. He handled their questions so well. Sweet, sweet boy!




Today Jason took the kids for donuts in their PJ's. They love this Saturday morning tradition that had been put on hold. He also has an afternoon of bike riding planned with them. He is going to try to get Ben to ride without training wheels. Then hopefully, since I am still not able to participate in the action, we will have a movie night this evening and I will get some cuddling in :). Meme bought them a special movie to watch as she is here helping me.

A couple other things I want to remember are that I came home on Thursday to about 30 minutes of card opening. I can't believe the amount of people who have been there for us and prayed for us. It is still overwhelming to me. Some were from people I went to college with, some were from people from the church I grew up in, some from people I don't even know- from here or other places, some from church people here, some from family, some from friends...tons and tons of cards. Then yesterday, I got even more. You wonderful people! I have not felt alone a single step of this journey! Thank you so much!

This last picture is of Jason shaving. He started growing out a beard sometime in November when everything started unwinding for us. If you know my handsome hubby very well, you know it takes him a while to grow one. :) He shaved it just before we left Boston. He told me he thinks that he will grow it every year around that same time to remind him of what God has done for us. I love that man so much. I am so blessed to have him in my life.

Thursday, February 23, 2012

Special People at MGH

I wanted to write a little about the different people in the hospital that God placed along my surgery and recovery paths.  We always pray for the doctors, nurses, and others caring for the sick. In this case I want to share their names and a little about them with you. I also wanted to write for myself, how I remember things happening. Hope you don’t mind.

Entrance to Mass General Hospital
The tallest building on back left is Ellison tower where I was.


Preop-
I can’t quite remember the preop nurses names. My time with them was very short. They took my vitals and asked questions about my health history. Don and Donna Millican, along with my parents, and Jason circled around my bed and read verses and prayed with me. It was very comforting and helped it set up a peaceful transition when they came to take me. What I do remember is that my preop nurse had been at Mass. General Hospital (MGH) for 28 years. She was very kind and reassuring that this was the place to be and that Dr. Mathisen was the doctor to be with. She had been there when Dr. Grillo was still there. He is the doctor that perfected this procedure and actually trained Dr. M. It was a comfort knowing we were finally at a place that I wasn’t the only patient with this…or the one in however-so-many that they had taken care of.

Off to Surgery-
I wish I could remember the name of the “host” as we call them at Saint Francis, I think they call them transport techs at MGH. He was a funny guy. We got to talk quite a bit. He had been in Vietnam and then served on the Boston PD as an investigator.  I want to say his name was “Don” or “Bob”. Something shortened. J He used to investigate corrupt police officers. He told me that a corrupt officer was worse than a bad guy off the streets a lot of time because they thought they were so far above the law. He had retired from that and decided and wanted to do something in healthcare. He had been at MGH for a while and nearly everyone we passed said hello to him. He told me he wanted to to write a book someday about all he had seen and done. I of course, encouraged that! Good for him! I hope he does it.

Next, he parked my stretcher in this tiny closet type thing. It was directly across the hall from what would be my Operating room (OR).  It was an opening in the wall, kind of like a little cubby with all sorts of “getting ready for surgery” things. That is where I met my OR nurse, Maura and said goodbye to “Bob”.  Oh, I loved Maura! She was young, super sweet, and explained everything. She spent a good bit of time talking to me about Dr. M, the surgery, what to expect, answering questions, and then just asking about me…marriage, kids, where I was from. I never once felt like a number or just a patient at MGH. I always felt like a person.  Maura, actually was in on my Bronchoscopy at the end of my stay at MGH as well. She skipped her break so she could go through that with me. So sweet! After Maura was done talking with me she introduced me to the resident anesthesiologist. This was another girl, she was probably a little older than me. Also super nice. I can’t remember her name sadly. I was getting a little nervous by this time. She immediately started talking to me like she had known me forever. I asked how she knew so much about me and she said “ I read your entire chart last night”. How’s that for feeling comfortable? I made me feel so much better. She placed my IV, did some labwork, and while we were waiting for the labwork to come back she placed an arterial line. Now, I have seen and assisted on dozens of A-lines being placed. NEVER, did I think I would be fully aware that one was being placed on myself.  She really did great and although I wouldn’t say it was “comfortable”, it really wasn’t that bad. After all that, I met the rest of the team (another nurse, the anesthesiologist, another surgeon) and we rolled into the OR. After a few minutes of getting all hooked up, Dr. M joined us. I can only remember them saying we are right here with you…and me saying “thank you, thank you” over and over and I guess I was out.

Waking from Surgery
Waking from surgery is such a fog and actually up until a couple days afterward my memories are the same. I remembered that Maura had told me I would only have a catheter if they were able to do the entire surgery.  So, with that, as I was waking up, I felt a little tug when they were moving me over to the stretcher. I knew that feeling, and I knew that they must have been able to do the resection. Next thing I remember was my neck being thrust forward and pillows being stacked behind it. That, and being extremely uncomfortable.

ICU
I remember voices in and out as I woke in the ICU. I can vaguely remember looking at a clock and it being either 3 or 4 something. Another indication that they must have been able to do the surgery.  I was so uncomfortable and had a newby  Jason was able to tell me more about how good to me she was then what I can actually remember. I am grateful to nurses who do an amazing job when they know that the patient will never remember what all was done for them.

Thoracic Floor
The next day I was moved to the thoracic floor. This is where I stayed for the remainder of my time at MGH. Each morning a crew of doctors and my nurse  (one doctor was one of the surgeons in on my case) would round on me. This would happen around 7:20-7:40. I was amazed at this type of teamwork and continuity of care. They met on me every morning and every one of them knew what had happened through the night or during the previous day, and they all had the same game plan.  Dr. M would come in around 2:30 later that afternoon.  I had many great nurses, Ashley, Joyce, Stacy, Kerri, Caroline, Jesse, Rick…all just names to you, but to me, I will always appreciate the time that they took to take care of me.

One nurse I have to mention specifically, her name was Nikki. She had the sweetest spirit. She spent much time comforting me when I was frustrated with myself or missing my kids. She spent time with Jason and my parents, learning about them. Sometimes, the time someone takes to be your friend is so special to you. It was like this with Nikki. She has only been a nurse for 5 months. She is a wonderful one. I did all I could to recruit her back to Oklahoma to work with me! J One day she sweetly asked me about Jason. She couldn’t believe that a husband would be that caring. Her words were “ it melts my heart to watch him with you”. That tells you a lot about my sweet husband as well.  She took good care of me physically and emotionally.
There is one other staff member I want to mention who meant a lot to me.  Typically tracheal resection patients don’t have anything to do with physical therapist. Since I was on crutches they were a little concerned with my balance since my head was stitched forward and they did not want me to pull on my throat area with my arms over the crutches. I first met Megan on a Monday. She helped me get up and walk “the loop”. This was the first time I made it all the way around. I was somewhat frustrated with myself as other patients were “looping” and passing me. She was so sweet and encouraged me that I was right where I should be. When we got back to my room my neck and shoulders hurt SOOO bad. She said she had been taking some classes in massage and she took time to massage my shoulders for about 15 to 30 minutes. She came back and did this for me on other days of my stay as well. I wish they would have massage therapy come in for all resection patients. I cannot even tell you how painful it is for your shoulders and neck. She was wonderful and took time to help me and encourage me. Things she didn’t have to do. Love her! She was another that I tried to recruit to Oklahoma J

Megan and I hours before we left Boston


Other help
I want to mention a few other people that were physically there helping me. Not staff, but family. My sweet Jason was so far out of his comfort zone but he helped me each time he saw an opportunity. He held my hand while nurses or PA’s took drains out or stuck me (something I know he can barely stomach). He helped me try to get comfortable, walk, clean up, and prayed and read verses with me. He was such sweet support. Mom and Dad were wonderful as well. That sat endless hours with me, walked with me, encouraged me, helped reposition me and helped me clean up. I am thankful to all of them. It can be very difficult when the person you are helping can’t verbally communicate and is so uncomfortable. They had great patience with me and I appreciate all that they did for me.

This is a lot of information but I want to remember the sweet people that were at the hospital with me. I hope if you are reading my blog that you are encouraged and see, as overwhelmingly, as we did, God’s hand in all that we experienced. Whether it be all those who weren’t with us but were praying or those who were with us caring for us, God is amazing, and was involved in each step.